We all know how important diet is for us MS'ers. But now a study suggests that exposure to certain gut bacteria at a young age may cause multiple sclerosis (MS) and fuel its progression.
The study, “Gut dysbiosis breaks immunological tolerance toward the central nervous system during young adulthood,” appeared in the journal Proceedings of the National Academy of Sciences. This suggests getting you gut bacteria right could be a good strategy for managing your MS.
Read on »
Patients with multiple sclerosis will soon have access to a new test which can tell them exactly what type of MS they have and how well their medications are working.
Click here to read more.
What's right for me may not be right for you
In all the blogs and emailing I do about MS and biotin I have recently noticed a theme that I want to share.
Many people (including myself) are reporting increased spasticity when taking biotin (Vitamin B7) at 300mg/day. Spasticity manifests it two ways. Clonus and Tonus. Clonus is the uncontrollable muscle contractions that result in twitch or jumpiness. Tonus is a partial muscle contraction that results in a stiffness or cramping of the muscles.
Many have reported that Magnesium supplements help and I myself use our MS-Mag Boost to help minimise this.
Lot's of water also seems to help but a more effective thing that seems to be emerging is adjusting your dose of biotin.
There are more and more reports of people taking less than the recommended 300mg/day and still achieving benefits. I have also found this. When I take 4 x 75mg/day my spasticity is really annoying. Even with a lot of Magnesium and water. However when I take 3 x 75mg/day the spasticity seems a lot less but the benefits of better bladder control, less urgency, higher mental alertness, less fatigue are still achieved. If I reduce the dose further, to 2 x 75mg/d (150mg) I find I start to loose the benefits. I have seen reports from others that 100mg of biotin per day is enough for them to feel the benefits. I know 100mg is not enough for me.
I suggest everyone experiment with your dose and find what is right for you. It may be that it is linked to body weight. If you feel like letting me know what dose is right for you and what your weight is I would be revery interested in heading from you. You can comment here or drop me an email..
Here is a great interview with Dr Coibmra (in English) on the protocol he has developed over the past 15 years. Well worth a look.
Click here for Dr Coimbra Interview
The Consortium of Multiple Sclerosis Centres (CMSC) has recently held a webinar of experts discussing the role of vitamin D in MS. Click here to read more.
"This is the first time that a drug has reversed the progression of the disease in a statistically significant proportion of patients,” Professor Ayman Tourbah at
CHU de Reims, France, and the studies’ principal investigator, said in a press release.
An interesting investigation in Ireland into the relationship between micro-organisms in your gut and Myelin production and how it relates to Multiple Sclerosis.
To D or not to D Posted on 17 Mar 12:39 , 0 comments
Vitamin D, how important is it and how much?
Most of the Vitamin D in our bodies is made by our skins exposure to sunlight (UltraViolet B). Vitamin D has long been thought an important indicator/trigger for MS. The further you live from the equator (less sun exposure) the more likely you are to get MS.
Today studies/trails are going on all over the world into the effect Vitamin D has on MS.
Two main forms for Dietary Supplements are D2 and D3. D3 (cholecalciferol) is the most biologically effective form.
MS experts suggest 10000 IU of Vitamin D/day for MSers and 5000/day for family members. If you get 10-15 minutes of full body sun/day you are probably getting close this this. But most of us need supplements to top it up.
Get your blood D levels tested 4 times a year. Middle of each season to see how much you need to top it up by. MSers are aiming for 150-200nmol/L (60-80ng/mL in the USA).
My levels were low, even though I was getting quite a lot of sun and supplementing with 6000IU from our MS-Biotin Complex (below 150). Doctor gave me a 50000 IU pill to get my levels up. Now they are a little over 200 so plan the get retested in another few weeks to see how my levels have settled down after the mega dose I took.